Membership in the Exon 20 Group is FREE, but we do "onboarding" of each patient first before you can join our community. Please call to schedule an onboarding appointment so that you can access our numerous free services, 602-618-0183. Introductory emails describing your particular situation are welcome before we schedule our phone call with you. Send to email@example.com
The Exon 20 Group is a laser-focused, multi-stakeholder, global coalition of patients, care partners, family members, thoracic/medical oncologists, scientists, molecular profiling labs, and pharmaceutical companies and biotechs with the mission of converting exon 20 insertion mutations into chronic diseases and then curing them. Join us!
Since ICAN and the Exon 20 Group strictly adhere to all HIPAA (Health Insurance Portability and Accountability Act of 1996) provisions to protect your privacy, during our initial intake call/meeting with you, we will review, and you will have a chance to discuss with us our Navigation Consent forms.
We never sell your information and only release information with your explicit permission (for example, when setting up a second opinionat your request, applying for expanded access/compassionate use, or inquiring about a clinical trial).